There are certain things that I do each day, part of the semi-routine I have going. Reading is a habit of mine, and I read everything from online op-eds to
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I Am Rare: Rare Disease Day 2020 – 29 February
Over 300 million people are living with one or more of the 6,000+ rare diseases in the world today. I am one; I am rare. In October 2019 I was
Infusion therapy & a good news day.
This week has been exhausting… and it is only Wednesday. I’m not complaining though, because today was a good news day. I wasn’t sure what to expect as we headed
A Breath of Fresh Life
Waking up from anaesthesia wasn’t as glamorous or fun as I was hoping it would be. I didn’t really know what to expect from this procedure; I was under 10 the last time I had a major surgery, so this was almost a new experience for me.
Soon I will be breathing normally again!
Yesterday Justin took me to my first appointment with two of the specialists at the University of Utah that I am seeing for my GPA. This appointment was for my
