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Scrappy Little Misfit

by Candace Woodbury

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FEATURES

ecadnac.i

NGO employee by day. Artist and writer by night.
Diagnosed with #granulomatosiswithpolyangiitis 10/16/2019 (vasculitis)
Be Kind.
📖 @candidnook

Round 4 Rituxan complete! Blood work in two weeks

Round 4 Rituxan complete! Blood work in two weeks and hopefully mission remission will have been achieved! That is the ultimate goal… to reach and maintain remission, and get back to traveling and living life! ⁣
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⁣All effected areas are doing well. I did start using a nebulizer to help my trachea out, and that has been fabulous. Hopefully I will get some energy back soon as well! ⁣
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⁣Now to not catch any bugs… being immunocompromised is a little stressful at times, but all will be well. ⁣
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⁣I am so grateful to have an amazing team looking over me, and an amazing husband who has been right by my side through all of this!⁣
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⁣It’s been one heck of a year, but after we get my blood results we will hopefully get a three month break from it all. 🖤🖤🖤⁣
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⁣#infusion #infuisionday #chronicillness #invisibleillness #raredisease #vasculitis #granulomatosiswithpolyangiitis #GPA #subglotticstenosis #prednison #rituxan #healing #remission

Today is #RareDiseaseDay a day to help raise awar

Today is #RareDiseaseDay a day to help raise awareness about rare diseases and their impact on patients’ lives. ⁣
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⁣Awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. The majority of rare diseases have no cure and many go undiagnosed.⁣
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⁣I am Rare. Diagnosed with #GranulomatosiswithPolyangiitis and #IdiopathicSubglotticStenosis in 2019. ⁣
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⁣For More information visit rarediseaseday.org

Waking up to these two gals and their snuggles 🥰! Always makes my day 🖤.

I’m not a big fan of selfies, but this one comes

I’m not a big fan of selfies, but this one comes with a story... I’ve never been much of a morning person, but this morning was particularly difficult. Forcing myself to get out of bed for an important work call that couldn’t be missed, I had to power through the “I feel like I got hit by a bus” feeling coupled with brain fog.
These feelings along with serious fatigue and other symptoms are something that you have to deal with when you have a chronic disease like GPA and additionally all the side effects from the necessary medications (currently I am not enjoying/getting along with my prednisone, I’m sure many of you can relate). Despite it all life doesn’t stop for anyone and I’m a gal with dreams, goals, and a desire to live life on my terms.

So, here I was in all my morningness... powering through the day until now. When I can stretch, sit back, relax, and enjoy a book.
May we all find ways to keep on keeping on, with whatever hand we’ve been dealt. 🖤🙏🏻

New blog post is up on Scrappy Little Misfit. Just

New blog post is up on Scrappy Little Misfit. Just another quick update about my appointment yesterday at the University of Utah Hospital and my upcoming surgery. ⁣
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⁣Learning to live with a disease like #granulomatosiswithpolyangiitis has been a challenge, and will likely continue to be one of the greatest challenges of my life. We are all fighting our own battles every day, even those that are not visible on the outside. I’ve been lucky to have amazing doctors, a quick diagnosis, and a path forward… not everyone with this disease has the same experience. We have to learn to be our own advocates, to learn about GPA, and to listen to our own bodies. It isn’t always easy… far from it. ⁣
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⁣Remember to be kind to yourself, be patient with yourself, and be kind to others. ⁣
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