This week has been exhausting… and it is only Wednesday. I’m not complaining though, because today was a good news day. I wasn’t sure what to expect as we headed down I-15 to Salt Lake City on our way … [Read more...] about Infusion therapy & a good news day.
A Breath of Fresh Life
My Nightmare — and a Turning Point For a few years now, I would say approximately 3-4, I have had issues breathing. It started slow, mostly when I was hiking, biking, snowmobiling… but in 2019 … [Read more...] about A Breath of Fresh Life
Oh, the side effects of prednisone.
Christmas Morning I started taking 60 mg of prednisone daily. I wasn’t really sure what to expect regarding side effects outside of insomnia, which is something that I am already dealing with due to … [Read more...] about Oh, the side effects of prednisone.
On Moving Forward & Waiting.
When I was in my mid to late ’20s, I started experiencing significant sinus congestion, pain, constant sinus infections, headaches, and bloody noses. I saw a few different ENT’s, was put on … [Read more...] about On Moving Forward & Waiting.
Feeling the weight of diagnosis.
I’m beginning to feel the seriousness of my diagnosis, Granulomatosis with Polyangiitis (GPA). In the last few days, I was unsure of how I was feeling and was trying to process everything. But the … [Read more...] about Feeling the weight of diagnosis.
Diagnosed; my new journey with Granulomatosis with Polyangiitis
Wednesday, October 16th, Dr. P called me to let me know that my blood tests came back ANCA positive. I have been diagnosed with Granulomatosis with Polyangiitis (GPA), formerly named Wegener’s after a … [Read more...] about Diagnosed; my new journey with Granulomatosis with Polyangiitis
